Hum Fleming, 28-year-old fashion publicist and great-niece of James Bond writer Ian Fleming, has been chosen as the ambassador for Young Epilepsy and is the face of its new campaign.

Young Epilepsy, the national charity supporting children and young people with epilepsy, has debuted its first major national campaign, ‘In The Moment,’ in an attempt to educate people about the condition that directly affects over one million young people and their families across the UK.

The initiative has been launched in the framework of Purple Day that takes place on 26 March, which invites people to wear purple and host events in support of epilepsy awareness. 

Fleming, who was diagnosed with temporal lobe epilepsy when she was only 13 years-old, says, “I have lived with epilepsy for 15 years and have to say it’s not been easy. Aside from my own personal experience, epilepsy continues to have a major impact on the lives of many young people today; and can affect anyone, at any time. That’s why I’m delighted to be supporting the launch of such an important national campaign from Young Epilepsy, ‘In The Moment.’”

‘In The Moment’ refers to the moment when a person’s life changes due to epilepsy and the impact it can have on their lives. Young Epilepsy’s ambition is to inspire those affected by the condition talk about the defining moment in their lives and get people involved in the charity.

In the emotional two minute-long video that was released as part of the campaign, Fleming shares her first experience with epilepsy, tries to explain how epilepsy feels like for her and convey the agony and confusion both her and her parents went through, while putting out a message of support for the campaign.

The campaign doesn’t focus on the negative effects of epilepsy, but instead celebrates the positive stories of people who have learned to deal with it and overcome it. ‘In The Moment’ also tries to educate people of way to support and improve the lives of people suffering with epilepsy.

Young Epilepsy encourages people to tell their stories on their campaign website in hopes of confronting the stigma associated with the condition and raising awareness of the true impact of epilepsy on young people and those around them.

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